Rare Dementia Support

Edward Bushnell in Oxfordshire, who is 62 and has posterior cortical atrophy, says he has ‘no alternative’ but to be positive. He explains how he manages his symptoms.
Dementia together magazine: Aug/Sept 21

Michael Andrews originally from Northern Ireland, is 61 tells about life with posterior cortical atrophy (PCA), a type of dementia, during lockdown.
Dementia together magazine: Feb/Mar 21

The study aims to provide a summary of recent developments for diagnosing and managing posterior cortical atrophy (PCA).
Yong, K. X. X., Graff-Radford, J., Ahmed, S., Chapleau, M., Ossenkoppele, R., Putcha, D., Rabinovici, G. D., Suarez-Gonzalez, A., Schott, J. M., Crutch, S., & Harding, E. (2023). Diagnosis and Management of Posterior Cortical Atrophy. Current treatment options in neurology, 25(2), 23–43.

Posterior cortical atrophy (PCA), typically considered a focal variant of Alzheimer's disease, is a neurodegenerative syndrome dominated by deterioration of visuospatial, visuoperceptual, numeracy and literacy abilities. The erosion of these skills reflects the pathological atrophy of the primary visual cortex, as well as the dorsal (occipitoparietal) and ventral (occipitotemporal) visual streams.
Beh SC, Muthusamy B, Calabresi P, et al Hiding in plain sight: a closer look at posterior cortical atrophy Practical Neurology 2015;15:5-13.

Posterior cortical atrophy (PCA) is a neurodegenerative syndrome that is characterised by progressive decline in visuospatial, visuoperceptual, literacy, and praxic skills. The progressive neurodegeneration affecting parietal, occipital, and occipitotemporal cortices that underlies PCA is attributable to Alzheimer's disease in most patients. However, alternative underlying causes, including dementia with Lewy bodies, corticobasal degeneration, and prion disease, have also been identified, and not all patients with PCA have atrophy on clinical imaging. This heterogeneity has led to inconsistencies in diagnosis and terminology and difficulties in comparing studies from different centres, and has restricted the generalisability of findings from clinical trials and investigations of factors that drive phenotypic variability.
Sebastian J Crutch, Manja Lehmann, Jonathan M Schott, Gil D Rabinovici, Martin N Rossor, Nick C Fox, Posterior cortical atrophy, The Lancet Neurology, Volume 11, Issue 2, 2012, 170-178

Posterior cortical atrophy PCA is one of the rarer types of young onset dementia, initially affecting vision while often leaving memory intact. An insight into the condition.
'It's building up a picture that's the problem' / Teresa Nahajski and Helen Scott (2019) The Journal of Dementia Care Vol 27 No 2 March/April 2019 p. 30-31

A discussion of the rare form of dementia known as posterior cortical atrophy (PCA), drawing on the experience of Linda Hall, diagnosed at the age of 59.
Bamji, N, Maciejewski,C, Living with PCA: 'just take everything day by day' Journal of Dementia Care, Volume 25, Number 5 September/October 2017, p. 30-31

I have received a PCA diagnosis. What next?