Frontotemporal dementia

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  Frontotemporal dementia

  Frontotemporal dementia (FTD) is the name given to dementia when it is due to progressive damage to the frontal and/or temporal lobes of the brain. The symptoms of FTD depend on which areas of the brain are damaged. In contrast to Alzheimer’s disease, memory often remains unaffected in FTD, especially in the early stages. This page on the Dementia Australia websites describes the variants of this disease.
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  Frontotemporal dementias : webinar

  In this video we are joined by Professor Amy Brodtmann, discussing frontotemporal dementias. The video will help you understand the types and differences experienced, the parts of the brain affected and the symptoms, changes, strategies, options and support available.

• The Younger Onset Dementia Guide by Dementia Australia

  Publication Date: 2025

  The Younger Onset Dementia Guide is for anyone impacted by younger onset dementia. The information in this guide is divided into four parts. Part 1: About dementia and younger onset dementia, Part 2: Supports, services, and advice, Part 3: Support and information for carers and family members., Part 4: Useful tools.
• The Dementia Guide by Dementia Australia

  Publication Date: 2024; edited 2025

  For people living with dementia, their families and carers. The Dementia Guide is an important resource for any person impacted by any form of dementia, of any age. This resource contains information about the impact dementia may have on a person, the treatment, support and services they may need. It is available to read online, download as a pdf, listen to an audio version or request a print copy.

• Frontotemporal Disorders Information for Patients, Families, and Caregivers by National Institutes of Health

  Publication Date: 2023

  This booklet is meant to help people with frontotemporal disorders, their families, and caregivers learn more about these conditions and resources for coping. It explains what is known about the different types of disorders and how they are diagnosed. It also describes how frontotemporal disorders are treated and managed, with practical advice for caregivers. Sources of additional information are included.
• When Love Meets Dementia: frontotemporal degeneration (FTD) and the family by Ada Anbar

  Publication Date: 2018

  Frontotemporal Degeneration (FTD) is now recognized as one of the most common forms of dementia in individuals under age 65, second only to Alzheimer's. Shedding light on a little known brain disease, this volume examines FTD from a few angles, beginning with the author's insightful memoir of her husband's struggle with FTD and its impact on their family. Detailed background information on the disease is provided along with discussion of related issues.
• What If It's Not Alzheimer's? by Lisa Radin; Gary Radin

  Publication Date: 2007

  This book is the first and only comprehensive guide dealing with frontotemporal degeneration (FTD), one of the largest groups of non-Alzheimer's dementias.
  This resource covers medical facts, clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. There are also sections on the daily care routine including exercise, socialization, adapting the home environment, and behavioural issues along with caregiver resources and caregiver wellbeing.
• Sean's Story: My five tips for living well with frontotemporal dementia by HammondCare

  Publication Date: 2020

  Sean’s Story is the result of conversations between Sean Kelly, who lives with frontotemporal dementia (FTD), and Deborah Moore, a Dementia Consultant with the Dementia Centre. Sean and Deborah have known each other for many years and have spent many hours talking about his journey with FTD.
• Activities for the Family Caregiver - Frontotemporal Dementia / Frontal Lobe Dementia / Pick's Disease by Scott Silknitter

  Publication Date: 2015

  Offers information and insight to enhance quality of life through improved social interactions as well as activities of daily living, safety and general caregiver information. Learn new communications and activities strategies to improve time spent with your loved one. Gain new insight as you learn the 'how to's,' 'why's,' and techniques of activities - daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy.
• Frontotemporal dementia in the eCollection

  review available resources from the Dementia Australia library eCollection
• The Unexpected Journey Finding Strength, Hope and Yourself on the Caregiving Path by Emma Heming Willis

  Publication Date: 2025

  The day Emma Heming Willis' husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months. With no hope or direction, Emma walked out of that doctor's appointment frozen with fear, confusion and a sense that her world had just fallen apart. With The Unexpected Journey, Emma has written the book she wishes she'd been handed on the day of Bruce's diagnosis.